Leek United raises money for a toddler born with rare genetic condition

Michael Lloyd

May 18, 2018

Leek United has raised £1.18m for specialist therapy sessions to help a toddler born with a rare genetic condition.

Manager Sheila Kirk and her team at the society’s Derby Street office in Leek have spent the last five months running a series of fundraising events to support the family of Freddie Malkin, aged two.

The money will now be put towards the cost of sending Malkin for regular sessions at The Movement Centre in Oswestry, Shropshire – a specialist facility dedicated to helping children with a disability affecting their movement to reach their full potential.

Malkin suffers from lissencaphely, which presents many problems and obstacles for him, including: epilepsy, hypertonic limbs, hypotonic core, developmental delay; he also has a rare chromosome deletion.

His mum, Natasha Malkin said: “Freddie will attend The Movement Centre every eight weeks over the course of a year, and they’ll work with us to develop a daily regime, to help him with his general mobility.

“We’d like to thank Leek United and everyone else who continues to support us; it’s completely overwhelming, and I can’t walk through the town with Freddie without someone stopping us to chat and wish us well. We really are grateful!”

Fundraising events organised by Leek United’s Derby Street team included a book sale, tombola, and a raffle with a signed Stoke City Football Club shirt as the star prize.

Kirk added: “Everyone in Leek knows or has heard of Freddie, and there have been no end of people coming into the branch with donations. We’d like to say a big ‘thank you’ to everyone who has supported our fundraising for their generosity.”

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